My Rare Connections is a mobile application designed to connect individuals with a rare disease to others with the same rare disease. This is not another support group to only share information- this technology focuses on developing long term connections, support, and friendships through the rare disease journey.

This application is for anyone diagnosed with a rare disease or anyone caring for someone with a rare disease.

Register today and find others who have who you can relate to. Find each other and continue your rare journey together!


Contact Us